So after being in hospital for 4 days, we have decided to try this new life with Rylan on our own. Chris feels it is time to take off our training wheels and go home. Rylan is also eager to go home so she can see Grand B. We have been trained on how to give insulin, how to log everything in a chart (Chris already made an excel chart), and what to do when her sugar gets high and too low. We actually had that experience today after the class. Rylan had fallen asleep during it and had not eaten in 5 hours...anyways we got back to the room, we checked her sugar level and it was at 45!!! We want her levels to not go below 70 and not above 150. We immediately gave her a box of orange juice, gave her lunch, checked her levels 20 mins later and it shot up to 209. Then we gave her some insulin.
She is good now and a life specialist came by and talked to her about it. Rylan did really good and said she understood why she had to get her blood checked as well as take insulin. She said her body does not make insulin anymore. We are glad to hear she is starting to understand it. She just told me she wants us to go to her class and talk about it and she said even I could demonstrate how we measure her blood! We are so proud of her!!! We want her to be comfortable with her illness and to be able to talk about it freely and openly and not to be ashamed of it! Our kids never cease to amaze us!! We are blessed with so many people in our lives and are so thankful to such wonderful friends and family! I often still have some tears that I shed and feel overwhelmed with all that is to be done but that is expected. Now I have blood to check, shots to give, and meals to prepare! Right now they have told us to check her blood in the morning, lunch, dinner, before bed, and at 2 am in the morning. We will give her insulin right now for 3 times a day. Before breakfast, lunch, and dinner. We will then follow up with the doctor on Feb 27. So please pray we can get a routine down. I think Chris feels better than I do, but it might be that I just wear my emotions on my sleeve.
We have so appreciated every ones emails, comments on FB, as well as phone calls. You guys have all been very encouraging through this life change in our life. We love and thank you all for everything! We are so blessed with such wonderful friends and family. We also thank you for all the people who came to visit us at the hospital and for everyone praying for us. We also cannot forget all the people who helped watch our kids so Chris and I could both be down at the hospital to learn about this disease. Grand B came in to be with the kids and it meant the world do us. We could not have done any of this without you guys. We needed all of it!! We love you all!
4 comments:
We love you guys and we are praying often. Let us know when you are "ready" to Skype sometime.
Clover family,
You all are so strong, so caring, so brave. Sending lots of love to you all. Rylan and all of you hopefully will soon get into the grove of life with diabetes as a passenger, in the back seat!
I personally like to think of your Rylan "as a child with diabetes" not "Rylan is a diabetic", which allows appreciation of the multidimentional person she is, rather than her being defined by diabetes.
I wanted to tell you too that my dear Uncle Ed, a person with Type 1 diabetes, just celebrated his 85th birthday, thanks to a lifetime filled with people who care and have been vigilant about helping him manage for so many years. Miracles happen!
♥, Sue B
Im not worried, you guys have gone through much changes before in your life and always adjust. We all miss you here in WF. Love Kattis Tuva Niclas
Thanks for your kind words. You are right she is a child with diabetes. Chris got really mad one night when it went to ask a nurse a question...and they said oh the diabetic!! Chris said no not just the diabetic, her name is Rylan. We want people to know that she has it, especially her classmates so they are not scared but also to know that it does not define her. Just like you said Sue! I think I get the most sad when I think about the future, like will she be able to have sleepovers, etc. I know it will happen eventually. It is just scaring to think about now.
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