Okay so it has been exactly 7 days since we got the news about Rylan. We seem to be managing fairly well, but it still has not been easy. Chris copes by running and putting flow charts together so we can write down all her glucose levels as well as everything that goes in her tiny body. He has even already figured out the calculation to change the insulin if she decides to have more carbs. It is still over my head. I am not sure how I cope except maybe to try figure out meals. Right now we are both exhausted. We still prick her about 5-6 times a day and one being at 2 am. One of her shots she has to get at 7 am so regardless of what day it is, we must wake her up, check her blood and then give her shot. This morning she got really frustrated, but probably because she was still asleep. She still seems to be doing fairly well, but I think things might get more difficult. Today Cohen said he wanted apple juice and Rylan said no because it was not fair to have to watch him drink something she cannot. I made some yummy crystal light and everyone seemed okay.
Yesterday, Chris, Rylan, and I went up to her school to meet the nurse and talk to her teacher. The meeting went really well. The nurse, her teacher, and the counselor were all there and were so supportive about how to help Rylan. The nurse is super sweet and seems very knowledge about type 1 diabetes. I really like Mrs. Vaughn(her teacher) as well. She is ready to help. Rylan was super excited about seeing her classmates so we got to go down and see them. It was so funny because as soon as we turned the corner to the classroom, all the kids starting screaming, Rylan!! It was like Rylan was famous! I know that made Rylan feel special. We sat in the class with the nurse and explained together why Rylan was in the hospital and how her life is a little different now. It went really well and the kids asked good questions. I think it helped Rylan feel better. We even went back for the Valentines Party and Rylan brought her sugarfree jello. It went fairly well but at the end I think Rylan was a little sad she could not partake in the sweets. They had pizza, dipped pretzel sticks in frosting, and made jellybean wands as well got their box filled with candy. Before we left we took some of Rylan's candy to the nurse's station to use for her low sugar times when she needs some. Rylan kept asking can I have this or this? I knew she was sad. Later that day we talked to the diabetic nurse and the nurse said she could have some with dinner so she got to have a fruit roll-up with dinner. She was excited.
So Monday is the day, we will start school and begin to live a normal life the best we can. I have to be a huge planner which overwhelms me right now, but I think we can do it. So far I have gone to the grocery almost everyday and will continue to go. We find that all the kids like the new stuff I buy for Rylan, so we run out quite frequently. We initially thought we could just let Rylan have the special food, but are finding it is best for everyone to beable to have our new food choices. Whatever I make for Rylan's school lunch will be the same for Avery. I think it will cause us to be healther. In fact for dinner tonight, we had a rosterie chicken, rice, and green beans. I found myself measuring everyone's food and Avery asked why are you measuring everyone's food. I just thought it would be good!
No comments:
Post a Comment